BDR Submissions Overview
The sharing of data through the BDR requires the Contributor to maintain a BIRN BDR Portal Account and to accept the standard BDR Data Use and Data Contributor’s Agreements.
During the submissions process, as the Contributing Investigator responsible for the data to be shared, you will:
- create a New Submission from your BDR Portal Account, although you may choose to designate someone else as the Primary Contact who will oversee the submission,
- provide a description of your data and the original study,
- provide verification of IRB approval for the sharing of human data, with the guidance of the BDR staff,
- provide associated metadata to sufficiently describe imaging data, to ensure that shared data is meaningful and useful,
- assist the BDR staff to ensure that data are provided in readable formats that, when necessary, are sufficiently de-identified,
- work with the BDR to select an appropriate database resource and to annotate shared data to the BIRNLex/Ontological framework for intelligent search and integration with other data sources, and
- make these data publicly available in a reasonable time frame, as determined by the nature of the data and collaborative investigations.
Resources to assist in data sharing and ontological development are available through existing Program Announcements for potential BDR contributors.
To take the first steps or to learn more about sharing your data through the BDR, please submit inquiries or study information here, or contact us at BDR_info@nbirn.net.